Controversial care.data scheme not exactly ditched after all, says Life Sciences Minister

Many people are pleased about NHS England’s decision to ditch the care.data scheme to share patients’ confidential medical GP records across the whole range of NHS and social care organisations, because its patient consent and opt-out model was inadequate.

But although the headlines said one thing, the small print said another: it turns out that Life Sciences Minister George Freeman has announced that although the scheme will now be scrapped, work on setting up a system for shared confidential patient data will now be taken forward by the National Information Board.

It sounds like a case of the more things change, the more they stay the same. Continue reading

No opportunity to speak truth to power at NHS England’s Citizen Participation event, say Calderdale 38 Degrees supporters

Calderdale 38 Degrees supporters who attended NHS England’s “Citizen Participation” meeting  in York on Tuesday 17th June found the event full of contradictions.

Roger O’Doherty and Morrilly Gudenuff (not the delegate’s real name) were among 38 Degrees supporters calling on NHS England to come clean about undisclosed meetings with private health care lobbyists and the role of Big Pharma in drafting its plans.

They handed NHS England a petition, signed by over 140,000 people, demanding that NHS England declares all its meetings with lobbyists, as well as any conflicts of interest. Continue reading

Posted from Hebden Bridge, England, United Kingdom.